This thoughtful children’s book delves into the emotions and experiences of a young boy named Bobby, whose mother has been diagnosed with lupus. Once accustomed to a consistent routine of his mom walking him to school, playing on the swings, running errands, grocery shopping, and making dinner, Bobby now notices how her activities have changed. She drives him to school, takes evening naps, and watches him play at the park with his dad instead.
To help children understand the diagnosis and its effects, the story uses two symbolic characters: a wolf and a fairy.
“Mommy told me that lupus means wolf. Then she explained how having lupus makes you feel like there is always a wolf following you around and making you sick.”
“Miss Fairy is Mommy’s special helper and always reminds her to take care of herself.”
As Bobby learns about lupus, he discovers how to explain the condition to others and adapt to the evolving dynamics within his family.
This book serves as an excellent resource for educating families, especially children, about lupus and how they can support a loved one living with it. It encourages readers to seek help when faced with challenges, emotions, or demands, and to know they’re not alone in their journey.
Lupus is an unpredictable disease with symptoms and treatments that can significantly affect family life. Diagnosed most often during childbearing years, it can leave children confused about why their parent is tired, sore, or emotional. They may experience feelings of sadness, anger, loneliness, guilt, or worry. This book reminds children that asking questions and sharing their feelings can bring comfort and reassurance. It emphasizes their safety and the unwavering presence of love and care in their lives.
Above all, the story highlights the incredible resilience of children.
“Mommy will have good days and bad days, but with my love and my help, she can live a long happy life with me… and so can you with your Mommy!”