This survey aim to assess the knowledge of people living with lupus about their own disease. Several investigators from different centres and countries are involved in this effort led by Dr Arnaud and his team.
The Systemic Lupus Assessment score for Essential Knowledge (SLAKE) is an online tool designed to help patients living with lupus to take control and better understand this complex disease.
There are 44 questions taken at random from a pool of 400 questions which will test how well you understand 11 different lupus areas.
The typical completion time for SLAKE is less than 5 minutes
The primary aim of SLAKE is to allow individuals living with lupus to test their knowledge across 11 key domains, after which they can access videos designed to reinforce their understanding in areas that may need further attention (the videos are being planned).
It is recommended that the patient enter the name of the centre or clinic they are being followed at in the dedicated field (‘centre’) during the survey.