The Caregiver’s Journey: Life Alongside Lupus – Part 2
In Part 2 of The Caregiver’s Journey: Life Alongside Lupus, the focus turns to the caregivers themselves. A wife, daughter, and friend reflect on the emotional impact of caregiving, how lupus has shaped their relationships, and the importance of caring for their own well-being. They also share the sources of strength, resilience, and hope that have […]
The Caregiver’s Journey: Life Alongside Lupus – Part 1
Behind every person living with lupus is a network of loved ones who provide support, encouragement, and care. In this candid conversation, a wife, daughter, and friend share their unique experiences of supporting someone living with lupus, reflecting on the challenges, lessons, and moments of hope they have encountered along the way. Together, they offer […]
AI-Powered Precision Medicine in Lupus
In this episode, we discuss how artificial intelligence and precision medicine may shape the future of lupus care by supporting more personalized, patient-centred approaches. We explore how AI could help with day-to-day disease management, flare prediction, and treatment decisions, while also highlighting important limitations and considerations for patients. Bio: Dr. May Choi is a rheumatologist and clinician scientist who […]
Inside the Honey Agar Fellowship for High-Risk Pregnancies in Rheumatic Diseases
Join us for an engaging webinar featuring a rheumatology Fellow as she reflects on her year as the inaugural recipient of the Honey Agar Fellowship for High-Risk Pregnancy in Rheumatic Diseases. She will share key learnings, clinical experiences, and insights gained from working at the intersection of rheumatology and high-risk pregnancy care, highlighting how this […]
The Heart of Lupus Ontario with Julian Cappelli & Lisa Bilodeau
What drives a patient organization like Lupus Ontario? The Heart of Lupus Ontario takes you behind the scenes to explore who we are, what we do, and why it matters. Discover how patient voices, advocacy, research, and community support come together to make a lasting impact on the lives of those living with lupus. Whether […]
Mindfulness-Based Stress Reduction (MBSR) with Jodie Nimigon-Young
In this episode, Jodie Nimigon-Young shares her personal journey with lupus, reflects on the 10th anniversary of her book Fabulupus, and discusses how Mindfulness-Based Stress Reduction (MBSR) can support others living with lupus.
Life With Lupus: Jan Gillis
In this episode, we sit down with Jan Gillis as she shares her journey living with lupus. Jan opens up about the challenges she has faced, how she navigates daily life, and the activities that keep her motivated. She also offers valuable advice and practical tips for managing lupus and staying positive. Tune in for […]
Elizabeth’s Story, Strategies For Work-Life Balance, and Navigating Workplace Accommodations – PART 1
In the first episode of this two-part series, we sit down with Elizabeth Lo Serro, an Integrative Nutrition Health Coach, who shares her journey with Lupus and how it has shaped her career. She specializes in supporting overwhelmed women with Lupus to reclaim their vitality and confidence. Tune in as she discusses strategies for managing […]
Elizabeth’s Story, Strategies For Work-Life Balance, and Navigating Workplace Accommodations – PART 2
In part two of our series, Elizabeth Lo Serro, an Integrative Nutrition Health Coach, delves into managing Lupus flares at work and in relationships, balancing career goals with health needs, and how Lupus has impacted her productivity and personal connections. Elizabeth also shares her hopes for better patient-centered care in Lupus treatment and discusses exciting […]
Shared Stories – Joe Gallagher and Alex Gnydjenko
In this episode of the Shared Stories Podcast, we feature two inspiring lupus warriors, Alex Gnydjenko and Joseph Gallagher, who openly share their journeys with lupus. They discuss the challenges they’ve faced, their strategies to navigate life with the condition, and how they’ve found resilience and strength along the way. The conversation is filled with […]